Meet my neighbor Will & celebrate Wishbone Day
05 May 2011 3 Comments
July 6 2010 Will was born…
Will was a precious son , grandson, our neighbor and little friend.
Will was born with Osteogenesis Imperfecta also know as “Brittle Bones” his little skeleton was about a strong as an eggshell, but his spirit was that of a lion. Sent home at 2 weeks old with hospice he showed everyone that one doctors don’t have all the answers and that he was a fighter. We all grew to love Will over the next 5 months.
We all laughed over pictures of him getting his first bath , we were blessed to be there to witness his first smile. We all cheered and took pictures of his first outing in a stroller . We would go over and read to him, he was so very still… it hurt to move ,but his eyes so big and bright were always wide open taking in everything he could. Never really fussing he was just a joy to be with. Will was so fragile he couldn’t be held ,but he loved having his little round belly rubbed his forehead kissed and his tiny little hand would gently hold your finger.
He was an angel on earth.
We loved him.
Will was called home on December 4th 2010
Our hearts will never be the same.
Children with OI are called snowflakes because there are no two that are alike they are so unique and fragile. It started snowing here in Nashville the day he died and we had a record amount of snowfall this winter. Will’s lion spirit once again reminding us that he is still with us.
Tomorrow we are going to celebrate Will and other children with Osteogenesis Imperfecta with
Wish Bone day
This celebration includes wearing a Yellow T-shirt and blue jeans just to raise awareness to this disease. There are many different degrees to this disease Will had type 2.
Will here with Mommy and Daddy Tiffany and Jason .
Tiff , you and Jason are such an inspiration to all of us on. During the flood you kept us laughing with your wit and humor your spirits never failing. Watching you both parent your first born Will with such faith ,hope and LOVE was incredible. I am fairly certain of where Will got that lion spirit of his!
So will you wear Yellow with us tomorrow and celebrate and remember our little snowflake Will and all the children out there like him ?
Lord keep me as the apple of your eye; hide me in the shadow of your wings…
Psalm 17:8
Will on his first day home
Professional Pictures By Anya ELizabeth
